J Pain Palliat Care Pharmacother. 2009; 23(4): 374-9
In my last Internet-related article, I speculated that social networking would be the coming wave in the effort to share knowledge among experts in various disciplines. At the time I did not know that a palliative care site on the World Wide Web (WWW), palliativedrugs.com, already provided the infrastructure for sharing expert knowledge in the field. The Web site is an excellent traditional formulary but it is primarily devoted to "unlicensed" ("off-label") use of medications in palliative care, something we in the specialty often do with little to support our interventions except shared knowledge and experience. There is nothing fancy about this Web site. In a good way, its format is a throwback to Web sites of the 1990s. In only the loosest sense can one describe it as "multimedia." Yet, it provides the perfect forum for expert knowledge and is a "must see" resource. Its existing content is voluminous and reliable, filtered and reviewed by renowned clinicians and educators in the field. Although its origin and structure were not specifically designed for social or professional networking, the Web site's format makes it a natural way for practitioners around the world to contribute to an ever-growing body of expertise in palliative care.
Am J Prev Med. 2009 Dec; 37(6): 512-7
Eisenman DP, Glik D, Gonzalez L, Maranon R, Zhou Q, Tseng CH, Asch SM
BACKGROUND: Culturally targeted, informal social networking approaches to improving disaster preparedness have not been empirically tested. PURPOSE: In partnership with community health promoters and the Los Angeles County Department of Public Health, this study tested a disaster preparedness program for Latino households. DESIGN: This study had a community-based, randomized, longitudinal cohort design with two groups and was conducted during February-October 2007. Assessments were made at baseline and 3 months. Analyses were carried out January-October 2008. SETTINGS/PARTICIPANTS: Community-based study of 231 Latinos living in Los Angeles County. INTERVENTION: Participants were randomly assigned to attending platicas (small-group discussions led by a health promoter/promotora de salud) or receiving "media" (a culturally tailored mailer). A total of 187 (81.0%) completed the 3-month follow-up. MAIN OUTCOME MEASURE: A self-reported disaster preparedness checklist was used. RESULTS: Among participants who did not have emergency water pre-intervention, 93.3% of those in the platica arm had it at follow-up, compared to 66.7% in the media arm (p=0.003). Among participants who did not have food pre-intervention, 91.7% in the platica arm reported it at follow-up, compared to 60.6% in the media arm (p=0.013). Finally, among participants who did not have a family communication plan pre-intervention, 70.4% in the platica arm reported one at follow-up, compared to 42.3% in the media arm (p=0.002). CONCLUSIONS: Although both arms improved in stockpiling water and food and creating a communication plan, the platica arm showed greater improvement than the media group.
Am J Bioeth. 2009; 9(6-7): 45-6
Am J Bioeth. 2009; 9(6-7): 35-44
Lee SS, Crawley L
The convergence of increasingly efficient high throughput sequencing technology and ubiquitous Internet use by the public has fueled the proliferation of companies that provide personal genetic information (PGI) direct-to-consumers. Companies such as 23andme (Mountain View, CA) and Navigenics (Foster City, CA) are emblematic of a growing market for PGI that some argue represents a paradigm shift in how the public values this information and incorporates it into how they behave and plan for their futures. This new class of social networking business ventures that market the science of the personal genome illustrates the new trend in collaborative science. In addition to fostering a consumer empowerment movement, it promotes the trend of democratizing information--openly sharing of data with all interested parties, not just the biomedical researcher--for the purposes of pooling data (increasing statistical power) and escalating the innovation process. This target article discusses the need for new approaches to studying DTC genomics using social network analysis to identify the impact of obtaining, sharing, and using PGI. As a locus of biosociality, DTC personal genomics forges social relationships based on beliefs of common genetic susceptibility that links risk, disease, and group identity. Ethical issues related to the reframing of DTC personal genomic consumers as advocates and research subjects and the creation of new social formations around health research may be identified through social network analysis.
Am J Bioeth. 2009; 9(6-7): 25-7
Am J Bioeth. 2009; 9(6-7): 15-9
Greenbaum D, Gerstein M
Am J Bioeth. 2009; 9(6-7): 3-10
McGuire AL, Diaz CM, Wang T, Hilsenbeck SG
PURPOSE: This study explores social networkers' interest in and attitudes toward personal genome testing (PGT), focusing on expectations related to the clinical integration of PGT results. METHODS: An online survey of 1,087 social networking users was conducted to assess 1) use and interest in PGT; 2) attitudes toward PGT companies and test results; and 3) expectations for the clinical integration of PGT. Descriptive statistics were calculated to summarize respondents' characteristics and responses. RESULTS: Six percent of respondents have used PGT, 64% would consider using PGT, and 30% would not use PGT. Of those who would consider using PGT, 74% report they would use it to gain knowledge about disease in their family. 34% of all respondents consider the information obtained from PGT to be a medical diagnosis. 78% of those who would consider PGT would ask their physician for help interpreting test results, and 61% of all respondents believe physicians have a professional obligation to help individuals interpret PGT results. CONCLUSION: Respondents express interest in using PGT services, primarily for purposes related to their medical care and expect physicians to help interpret PGT results. Physicians should therefore be prepared for patient demands for information and counsel on the basis of PGT results.
Response to Open Peer Commentaries on "Research 2.0: Social Networking and Direct-to-Consumer Personal Genomics".Sat, 12/12/2009 - 1:37am | by daniel
Am J Bioeth. 2009; 9(6-7): 1-3
Lee SS, Crawley L
How to search for information on transcultural nursing and health subjects: Internet and CD-ROM resources.Sat, 12/12/2009 - 1:37am | by daniel
J Transcult Nurs. 1999 Jan; 10(1): 69-74
With the proliferation of electronic resources available to search for subjects related to transcultural nursing and health, nurses must keep abreast of computer-based tools that enable them to quickly and efficiently obtain information on a variety of topics. This article provides suggestions for narrowing and focusing a search on transcultural nursing and related subjects using key terms indexed in the Cumulative Index to Nursing and Allied Health Literature, International Nursing Index, Medline, Index Medicus, and Psychological Abstracts/PsychLit. Information about accessing the Native American Resource Information Service, Education Resources Information Center, Infotrac/Expanded Academic Index, and Sociological Abstracts also is provided. In the article, selected examples of Internet sites of interest in transcultural nursing and health are identified with their universal resource locator, and they are annotated. Web sites for U.S. government agencies, organizations, and commercial groups that concern transcultural nursing and health are cited. Global transcultural health and nursing Internet resources also are included.
J Nutr. 1997 Aug; 127(8): 1527-32
The World Wide Web (WWW) is a burgeoning information resource that can be utilized for current awareness and assistance in manuscript preparation and submission. The ever changing and expanding nature of the WWW allows it to provide up to the minute information, but this inherent changeability often makes information access difficult. To assist nutrition scientists in locating useful information about nutritional science journals on the WWW, this article critically reviews and describes the WWW sites for seventeen highly ranked nutrition and dietetics journals. Included in each annotation are the site's title, web address or Universal Resource Locator (URL), journal ranking and site authorship. Also listed is whether or not the site makes available the guidelines for authors, tables of contents, abstracts, online ordering, as well as information about the editorial board. This critical survey illustrates that the information on the web, regardless of its authority, is not of equal quality.
Am J Clin Pathol. 2009 Dec; 132(6): 818-23
Shirts BH, Gundlapalli AV, Jackson B
Electronic medical records have the ability to link to reference material, providing clinicians with immediate access to information relevant to patient care. Adding relevant links to laboratory test results could add value while minimizing the volume of ancillary text presented. We provided Web-based universal resource locator (URL) links with all results of 7 laboratory tests ordered at ARUP Laboratories (Salt Lake City, UT). URL links provided were modified 7 months later, and use between initial and subsequent URLs was tracked to establish frequency and duration of access to supplemental Web information. Monthly Web-site hit rates for individual tests varied from 0.00% to 3.00% (median, 0.12%). Rare and specialty tests averaged higher hit rates. There was no decay in hit rate 9 months after URLs were removed from test reports. We conclude that links to reference material are accessed by clinicians. The use of Web links months after links were no longer published raises an important issue of long-term maintenance and the resources required to support these features.
BMC Bioinformatics. 2007; 8: 487
Willighagen EL, O'Boyle NM, Gopalakrishnan H, Jiao D, Guha R, Steinbeck C, Wild DJ
See original: Userscripts for the life sciences.
J Digit Imaging. 2002; 15 Suppl 1: 20-6
Tellis WM, Andriole KP, Jovais CS, Avrin DE
Web-based integration methods can be used to resolve a fundamental issue in the transition from film to a picture archiving and communication system (PACS): the identification of relevant prior studies only available on film. Even in the most ambitious conversions from a film-based environment to PACS, there are issues regarding prior studies not on PACS. Failure to compare with prior exams is one of the known risk factors for malpractice in radiology. While most commercial PACS systems today have some degree of RIS integration, knowledge of prior studies is usually limited to an awareness of studies in the PACS. On the other hand, most RIS systems today do not or cannot distinguish between studies on film and those in PACS. We made the observation, from a set theory perspective, that in general: Therefore we sought to create a system that would query both the RIS and PACS and reconcile the results using the above set operation. The query is initiated from a display station via the invocation of a Web browser installed on that station. The process of starting the browser is implemented using a scripting language provided by the workstation vendor, though the use of other mechanisms, such as the CCOW (Clinical Context Object Workgroup) or IHE (RSNA Integrated Healthcare Enterprise) interfaces, can be supported by this architecture. The medical record number, which identifies the current patient and is the primary parameter of the query, is passed as part of the URL (Universal Resource Locator) used to launch the browser. Once running, the browser connects to a Web server that hosts a JSP (Java Server Page) page that performs a DICOM query of the PACS and an HL7 query of the RIS, and then collates the results using the set operation described above. Both the DICOM and HL7 functionality are provided by Java-based toolkits developed in house. The results are returned to the client's browser as a standard HTML page with a tabular format detailing which studies are on PACS and which are available only on film. The responsiveness of the system in terms of time required to complete the two queries and display the results was measured. In addition, the number of diagnostic reports, whose retrieval was triggered by the results of the queries, was monitored to determine the overall performance and use of the system. This project demonstrates that, with minimal modification of commercial software, Web-based integration methods exist to enable patient-context sensitive queries from the diagnostic workstation that identify relevant prior studies that exist only on film and are unknown to the PACS. As a result radiologist workflow is enhanced by the elimination of the need to consult a physically separate system for this type of information. In addition, quality of service is improved by providing more accurate and easier identification of relevant prior studies.
See original: RIS minus PACS equals film.